tag:blogger.com,1999:blog-4706374459042869519.post6178932176583566613..comments2023-10-06T09:08:06.583-06:00Comments on No Gluten, No Problem: The Prospect of a Celiac Vaccine: Part 2peterbronskihttp://www.blogger.com/profile/17048848527195520324noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-4706374459042869519.post-29915707357968332642011-06-13T14:02:16.630-06:002011-06-13T14:02:16.630-06:00I am definitely looking forward to the vaccine and...I am definitely looking forward to the vaccine and hope that I will be one of the folks it will help. Travel is a struggle. Grabbing a quick, inexpensive sandwich isn't an option. It has to be either cook my own food on vacation or have expensive meals in restaurants. And with restaurants, I can't necessarily go where the rest of the group is going and sometimes have to go somewhere by myself. Also, I miss a lot of work functions because they're held in restaurants that don't have options for me. I want to leave behind this life of being left out. I've found being gluten free to be rather lonely.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4706374459042869519.post-73716762380919987352011-06-01T11:21:05.777-06:002011-06-01T11:21:05.777-06:00Like others, I would be open to getting the vaccin...Like others, I would be open to getting the vaccine as a safety net for incidental gluten exposure, but I'd like to think I would still adhere to the gluten-free diet. <br /><br />I have to admit, though, that the idea of eating at my favorite pizzeria or drinking my husband's home-brewed beer is attractive. I've never cheated on my gluten-free diet, but I'd be a lot more likely to with the vaccine. That's not a good thing, and it would probably be better if I avoided the vaccine and the temptation that would come along with it.Melissahttps://www.blogger.com/profile/03416584139373809481noreply@blogger.comtag:blogger.com,1999:blog-4706374459042869519.post-4509066969062376932011-05-28T21:59:10.918-06:002011-05-28T21:59:10.918-06:00I have been struggling with all of this too, Pete....I have been struggling with all of this too, Pete. I have been diagnosed since 1995, so I am pretty well adjusted with my gluten free life. BUT, traveling and eating out can still be so difficult and it sure would be nice to have a safety net. <br /><br />I have been especially worried about this now since I was recently diagnosed with another AI disease and wondering how well I have really been doing eating GF all these years, ya know? Despite annual blood work that says I am doing well, another AI disease pops up. How much is it related? Dunno. Grrr.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4706374459042869519.post-11503090407397021862011-05-27T15:17:36.569-06:002011-05-27T15:17:36.569-06:00Another really interesting piece of reporting, Pet...Another really interesting piece of reporting, Pete. I enjoyed both the facts and your editorial comments!jgribblehttps://www.blogger.com/profile/06438309026561804605noreply@blogger.comtag:blogger.com,1999:blog-4706374459042869519.post-61469269326246256322011-05-26T17:53:16.150-06:002011-05-26T17:53:16.150-06:00Thanks for the great article!
I've got really ...Thanks for the great article!<br />I've got really mixed feelings about this vaccine. On one hand, I sometimes feel like I'd do anything to be able to eat whatever I want again. Life would be so much easier than it is now. But then again, I'm really sceptical about what this vaccine really does. My body is programmed to reject gluten so I seriously doubt the ability of this vaccine to reverse that. What if it treats the symptoms, but my body still gets damaged somehow? Perhaps the villi are still fine, but there are other things that gluten can effect. I don't know if it's worth the risk.<br /><br />However, if there was a special treatment we could take just before difficult situations, like travel or eating dubious food, I'd be all for it! It would give us coeliacs such freedom and relief from our fears. :) I suppose that vaccine would do that... but if I took it I'd be more likely to binge on gluten than anything else!Theresahttps://www.blogger.com/profile/13442547969239559022noreply@blogger.comtag:blogger.com,1999:blog-4706374459042869519.post-87498824953228744652011-05-26T12:34:16.814-06:002011-05-26T12:34:16.814-06:00Hi Missy... Thanks for sharing your perspective. I...Hi Missy... Thanks for sharing your perspective. I know exactly what you're talking about. While Kelli is now 100% gluten-free, a few years ago she was fully gluten-free in our home, but would occasionally eat gluten at business lunches. She would notice a different in how her body responded to it once she had mostly eliminated it from her diet. It got us thinking.<br /><br />Hi Anonymous... Thanks, also, for sharing your wife's story. You certainly describe several scenarios where safely remaining gluten-free is indeed a risk not unlike that of Russian roulette. Your seatbelt analogy, I think, is similar to my sentiments when I wrote that someone might choose to remain gluten-free but get the vaccine anyway, as a redundant backup system. As you said, no one expects a car wreck, but sometimes they happen. <br /><br />Cheers, Petepeterbronskihttps://www.blogger.com/profile/17048848527195520324noreply@blogger.comtag:blogger.com,1999:blog-4706374459042869519.post-30890571492933358442011-05-26T12:22:12.050-06:002011-05-26T12:22:12.050-06:00Thanks for your post with valuable information and...Thanks for your post with valuable information and heartfelt reflection.<br /><br />My wife has Celiac Disease. It makes every church potluck, every restaurant trip, every overseas visit, like playing Russian Roulette. <br /><br />She may choose to stay GF forever...but truthfully she has limited ability to do so, short of always refusing food she/I didn't prepare. This vaccine is like wearing a seat belt. No one expects a car wreck. No one expects the food preparer in the kitchen to make a mistake. But this happens.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4706374459042869519.post-72112647297146132622011-05-26T09:19:59.892-06:002011-05-26T09:19:59.892-06:00I tend to agree with you, Pete. Since my son was ...I tend to agree with you, Pete. Since my son was diagnosed with Celiac Disease 1-1/2 years ago, the rest of the family has also been decreasing the amount of gluten we ingest, and I have noticed a difference in how I feel. As time goes on, I learn more about how damaging gluten can be to our bodies, and so I am not excited to hear about the vaccine, either, as I think people will use it to continue down the path of unhealthy eating. Thanks for your thoughtful insight into this topic.Missynoreply@blogger.com